Community-Based
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Journal Search April 29, 2008
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Search web: NLM Gateway: A service of the U.S. National Institutes of Health
http://gateway.nlm.nih.gov/gw/Cmd?GMResultsSummary%26loc=lhc
Review: 2/ 12 (2003-2005)
Journals: 8/120 (2007-2008)
List titles of reviews selected
1. J Altern Complement Med. 2005:11 Suppl 1:S77-84. The future of patient-centered care: scenarios, visions, audacious goals.
2. Annu Rev Public Health. 2003;24:57-82. Epub 2002 Oct 23. Public health, GIS, and the internet.
List titles of journal articles selected
1. Hu Li Za Zhi. 2008 Feb;55(1) :81-6. Health literacy: the new outcome indicator for evaluating a health education program.
2. Health policy. 2008 Apr 23; Epub ahead of print. Internet use and the logics of personal empowerment in health.
3. Promot Educ. 2006;13(3):191-6. Evaluation of easy-to-read information material on healthy life-styles written with the help pf citizens’ collaboration through networking.
4. Health Educ Res. 2007 Dec;22(6) :757-69. Epub 2006 Aug 8. Asthma patient education opportunities in predominantly minority urban communities.
5. J Med Internet Res. 2005 Oct 4;7(5):e51.;Print. Computers and the internet: tools for youth empowerment.
6. Health Expect. 2003 Dec;6(4) :352-8. Provider-sponsored virtual communities for chronic patients: improving health outcomes through organizational patient-centered knowledge management.
7. J Gen Intern Med. 2003 Jul;18(7) :525-30. Internet access and empowerment: a community-based health initiative.
8. Prev Chronic Dis. 2007 Jul;4(3) :A55. Epub 2007 Jun 15. Feasibility of using a web-based nutrition intervention among residents of multiethnic working-class neighborhoods.
List abstracts of selected reviews and journals
Health literacy: the new outcome indicator for evaluating a health education program]
Chang LC.
Hu Li Za Zhi. 2008 Feb;55(1):81-6.
[Article in Chinese]
Department of Nursing, Chang-Gung Institute of Technology. shixu@seed.net.tw
Through health promotion campaigns, health literacy has become a vital factor in determining a population's health in terms of the macro view of health. Since the 1990s, the concept has been increasingly valued in American health circles. Health literacy not only means understanding medical information, but also implies the degree to which individuals have the capacity to obtain, process, and understand the basic health information and services needed to make appropriate health decisions. There are three instruments for estimating individuals' health literacy, including the Rapid Estimate of Adult Literacy in Medicine (REALM) , the Short-Test of Functional Health Literacy in Adults (Short-TOFHLA) and the National Assessment of Adult Literacy (NAAL). Literature review reveals that health literacy is an important indicator for evaluating the effectiveness of a health education program for the 21st century. The author suggests that nurses adopt such strategies for health education as designing educational materials that prompt introspection, using a range of Internet technologies and designing strategies of community empowerment to conduct health education programs, in order to improve clients' health literacy and raise the effectiveness of such programs.
Publication Status: publish
PMID: 18416027 [PubMed - in process]
The future of patient-centered care: scenarios, visions, and audacious goals.
Bezold C.
J Altern Complement Med. 2005;11 Suppl 1:S77-84.
Institute for Alternative Futures, Alexandria, VA 22314, USA. cbezold@altfutures.com
The U.S. health care system is transforming. It must. Patient-centered care (PCC) is a core quality that the system should include. This article presents the highlights of a project on the future of PCC created for the Picker Institute. As an example of futures work, this project developed four images or stories of what might happen, as well as a vision and audacious goals for what should happen to PCC. The first and most likely scenario is an increase in patient-centeredness as a function of current trends. However, in the second scenario, health care could become even more stressed and leave PCC behind as it seeks to lower cost without focusing on quality. The third scenario envisions more excellent systems that integrate PCC seamlessly into their work. The fourth scenario sees collaboration and shared responsibility, in association with advanced information tools, thereby enabling PCC to contribute to preventing illness and lowering health care costs. The scenarios indicate that the patient-centeredness of health care could improve slightly, stall, or advance significantly. The PCC Vision calls for each of us to be in charge of our health, and to get the care we need (not less and not more) in timely, effective, and personal ways consistent with our values. The audacious goals set an agenda with priorities from the PCC community. These include shared decision making by consumers, ensuring health care professionals are trained in supporting active patients, anticipating health and long-term care needs for individuals, adopting the Institute of Medicine's (IOM) simple rules for health care, and making the patient perspective a priority in policy and planning. Each of us and our organizations are confronted with the challenge of this vision and audacious goals. Health care professionals and provider systems, whether conventional or alternative in nature, face these issues. While complementary and alternative medicine (CAM) providers often get higher marks from consumers for their attention, many CAM modalities are largely provider-determined. Patient-centered care will require more empowerment and activation of patients and consumers.
PMID: 16332191 [PubMed - indexed for MEDLINE]
Internet use and the logics of personal empowerment in health.
Lemire M, Sicotte C, Paré G.
Health Policy. 2008 Apr 23; [Epub ahead of print]
Department of Health Administration, University of Montreal, P.O. Box 6128, Centre-Ville Station, Montréal, Québec, Canada H3C 3J7.
OBJECTIVES: The development of personal involvement and responsibility has become a strategic issue in health policy. The main goal of this study is to confirm the coexistence of three logics of personal empowerment through health information found on the Internet. METHODS: A theoretical framework was applied to analyze personal empowerment from the user's perspective. A well-established Canadian Web site that offers information on personal health was used as a case study. A close-ended questionnaire was completed online by 2275 visitors and members of the Web site. RESULTS: The findings confirm that the development of feelings of competence and control through Internet use is structured around three different logics. This implies three types of aptitudes that are fostered when the Internet is used to seek health information: doing what is prescribed (the professional logic), making choices based on personal judgment (the consumer logic), and mutual assistance (the community logic). CONCLUSIONS: A recurring issue in three logics is the balance of roles and responsibilities required between the individual and the health provider.
Evaluation of easy-to-read information material on healthy life-styles written with the help of citizens' collaboration through networking.
Daghio MM, Fattori G, Ciardullo AV.
Promot Educ. 2006;13(3):191-6.
Laboratory for Citizen Empowerment, Communication and Marketing Unit, Local Health Unit, Via S. Giovanni del Cantone, 23 - 41100 - Modena, Italy. m.daghio@ausl.mo.it
The objective of this study was to evaluate if easy-to-read information material on the prevention of chronic-degenerative diseases through healthy lifestyle co-written by communicators, educators, physicians and citizens -using a networking strategy- could be judged comprehensible. Readability scores were computed. The survey involved 100 individuals attending our centralized booking centre for medical appointments during an "index week". They filled out an anonymous questionnaire, just before and after they had read the material. Readability and comprehensibility frequencies were calculated. The participants had a mean age of 59.1+/-15.1 (SD) years (range 19-81yrs), 62% were females. Twenty-six percent of them had received no education, 30% "primary", 28% "secondary", and 14% had a "degree". According to readability scores, the booklet was "readable" by all persons who had finished primary school. Of the 100 participants, 40 percent found the booklet's language to be "easy" or "very easy", 46% "sufficiently easy", and 14% "difficult" for laypersons to understand. Ninety-four percent of them found no unintelligible words in the text. Education levels showed no differences. Readers' answers were more correct after they had read the booklet. The pre-test showed that 61+/-26% of the readers answered the comprehensibility items correctly. After reading the booklet, 81+/-17% of them gave correct answers. The after-minus-before net increase in knowledge was +20% (95% CIs +8 to +32%). The booklet was designed and written using a networking strategy with the help of the local population. It was found to be easy to read and quite clear.
Asthma patient education opportunities in predominantly minority urban communities.
Zayas LE, McLean D.
Health Educ Res. 2007 Dec;22(6):757-69. Epub 2006 Aug 8.
Department of Family Medicine, University at Buffalo, The State University of New York, NY 14215, USA. lzayas@buffalo.edu
Disenfranchised ethnic minority communities in the urban United States experience a high burden of asthma. Conventional office-based patient education often is insufficient to promote proper asthma management and coping practices responsive to minority patients' environments. This paper explores existing and alternative asthma information and education sources in three urban minority communities in western New York State to help design other practical educational interventions. Four focus groups (n = 59) and four town hall meetings (n = 109) were conducted in one Hispanic and two black communities. Focus groups included adult asthmatics or caretakers of asthmatics, and town meetings were open to all residents. A critical theory perspective informed the study. Asthma information and education sources, perceptions of asthma and ways of coping were elicited through semi-structured interviews. Data analysis followed a theory-driven immersion-crystallization approach. Several asthma education and information resources from the health care system, media, public institutions and communities were identified. Intervention recommendations highlighted asthma workshops that recognize participants as teachers and learners, offer social support, promote advocacy, are culturally appropriate and community-based and include health care professionals. Community-based, group health education couched on people's experiences and societal conditions offers unique opportunities for patient asthma care empowerment in minority urban communities.
PMID: 16896054 [PubMed - indexed for MEDLINE]
Computers and the internet: tools for youth empowerment.
Valaitis RK.
J Med Internet Res. 2005 Oct 4;7(5):e51.;Print
School of Nursing, McMaster University, HSC Room 3N28E, 1200 Main Street West, Hamilton, ON L8N 3Z5, Canada. Valaitis@mcmaster.ca
BACKGROUND: Youth are often disenfranchised in their communities and may feel they have little voice. Since computers are an important aspect of youth culture, they may offer solutions to increasing youth participation in communities. OBJECTIVE: This qualitative case study investigated the perceptions of 19 (predominantly female) inner-city school youth about their use of computers and the Internet in a school-based community development project. METHODS: Youth working with public health nurses in a school-based community development project communicated with local community members using computer-mediated communication, surveyed peers online, built websites, searched for information online, and prepared project materials using computers and the Internet. Participant observation, semistructured interviews, analysis of online messages, and online- and paper-based surveys were used to gather data about youth's and adults' perceptions and use of the technologies. Constant comparison method and between-method triangulation were used in the analysis to satisfy the existence of themes. RESULTS: Not all youth were interested in working with computers. Some electronic messages from adults were perceived to be critical, and writing to adults was intimidating for some youth. In addition, technical problems were experienced. Despite these barriers, most youth perceived that using computers and the Internet reduced their anxiety concerning communication with adults, increased their control when dealing with adults, raised their perception of their social status, increased participation within the community, supported reflective thought, increased efficiency, and improved their access to resources. CONCLUSIONS: Overall, youth perceived computers and the Internet to be empowering tools, and they should be encouraged to use such technology to support them in community initiatives.
PMID: 16403715 [PubMed - indexed for MEDLINE]
Provider-sponsored virtual communities for chronic patients: improving health outcomes through organizational patient-centred knowledge management.
Winkelman WJ, Choo CW.
Health Expect. 2003 Dec;6(4):352-8.
Centre for Global eHealth Innovation, University of Toronto, Ontario, Canada. w.winkelman@utoronto.ca
Patients with long-term chronic disease experience numerous illness patterns and disease trends over time, resulting in different sets of knowledge needs than patients who intermittently seek medical care for acute or short-term problems. Health-care organizations can promote knowledge creation and utilization by chronic patients through the introduction of a virtual, private, disease-specific patient community. This virtual socialization alters the role of chronic disease patients from external consumers of health-care services to a 'community of practice' of internal customers so that, with the tacit support of their health-care organization, they have a forum supporting the integration of knowledge gained from the experiences of living with chronic disease in their self-management. Patient-centred health-care organizations can employ the virtual community to direct and support the empowerment of chronic patients in their care.
PMID: 15040797 [PubMed - indexed for MEDLINE]
Internet access and empowerment: a community-based health initiative.
Masi CM, Suarez-Balcazar Y, Cassey MZ, Kinney L, Piotrowski ZH.
J Gen Intern Med. 2003 Jul;18(7):525-30.
Department of Medicine, MC 2007, University of Chicago, 5841 S. Maryland Ave., Chicago, IL 60637, USA. cmasi@medicine.bsd.uchicago.edu
OBJECTIVE: To determine whether access to health information via in-home Internet technology can positively influence empowerment among residents of a low-income urban community. DESIGN: In-home Internet access and training were provided to volunteers, who, along with a comparison group, were interviewed prior to and 1 year after initiation of the program. Community-based participatory research methods were used to design and implement the intervention. SETTING: A 57-block area on the West Side of Chicago. PATIENTS/PARTICIPANTS: Twenty-five community residents completed all phases of the technology intervention. Thirty-five randomly selected neighbors of these residents served as the comparison group. INTERVENTIONS: Members of the intervention group received Internet access via WebTV, training, technical support, and access to a community specific health-oriented web page during the course of the study. MEASUREMENTS AND MAIN RESULTS: Intervention group members were similar to comparison group members in terms of empowerment at baseline. After receiving Internet access and training, empowerment related to health decision-making improved significantly in the intervention group. Similar changes did not occur in the comparison group. Affinity for and appreciation of information technology also increased in the intervention group but not in the comparison group. As a result, differences in attitudes toward technology increased between the 2 groups over time. CONCLUSIONS: Using community-based participatory research methods, we found that Internet access to community-specific and general health information can lead to increased empowerment and appreciation of information technology. These benefits accrued among the intervention group but not among a random group of their neighbors.
PMID: 12848835 [PubMed - indexed for MEDLINE]
Feasibility of using a web-based nutrition intervention among residents of multiethnic working-class neighborhoods.
McNeill LH, Viswanath K, Bennett GG, Puleo E, Emmons KM.
Prev Chronic Dis. 2007 Jul;4(3):A55. Epub 2007 Jun 15.
University of Texas M.D. Anderson Cancer Center, 1100 Holcombe Blvd, Unit 125, Houston, TX 77030, USA. lmcneill@mdanderson.org
INTRODUCTION: Using the Internet to promote behavior change is becoming more desirable as Internet use continues to increase among diverse audiences. Yet we know very little about whether this medium is useful or about different strategies to encourage Internet use by various populations. This pilot study tested the usefulness of a Web-based intervention designed to deliver nutrition-related information to and increase fruit and vegetable consumption among adults from working-class neighborhoods. METHODS: Participants (N = 52) had access to the Web site for 6 weeks and received three e-mail reminders encouraging them to eat fruits and vegetables. The Web site provided information about overcoming barriers to healthy eating, accessing social support for healthy eating, setting goals for healthy eating, and maintaining a healthy diet, including recipes. We collected data on participants' use of the Web site, their Internet access and use, and their fruit and vegetable consumption. RESULTS: The mean age of the participants was 46 years, 73% were white, 46% did not have a college degree, and 12% had household incomes at or below 185% of the federal poverty index. They reported consuming an average of 3.4 servings of fruits and vegetables per day. More than half of the participants owned a computer, 75% logged onto the Web site at least once, and those who visited the site averaged 3.8 visits and viewed an average of 24.5 pages. The number of log-ons per day declined over the study period; however, reminder e-mails appeared to motivate participants to return to the Web site. Roughly 74% of participants viewed information on goal setting, 72% viewed information on dietary tracking, and 56% searched for main course recipes. CONCLUSION: The results of this pilot study suggest that Internet-based health messages have the potential to reach a large percentage of adults from working-class neighborhoods who have access to the Internet.
PMID: 17572959 [PubMed - indexed for MEDLINE
Public health, GIS, and the internet.
Croner CM.
Annu Rev Public Health. 2003;24:57-82. Epub 2002 Oct 23.
Office of Research and Methodology, National Center for Health Statistics, Centers for Disease Control and Prevention, Hyattsville, Maryland 20782, USA. ccroner@cdc.gov
Internet access and use of georeferenced public health information for GIS application will be an important and exciting development for the nation's Department of Health and Human Services and other health agencies in this new millennium. Technological progress toward public health geospatial data integration, analysis, and visualization of space-time events using the Web portends eventual robust use of GIS by public health and other sectors of the economy. Increasing Web resources from distributed spatial data portals and global geospatial libraries, and a growing suite of Web integration tools, will provide new opportunities to advance disease surveillance, control, and prevention, and insure public access and community empowerment in public health decision making. Emerging supercomputing, data mining, compression, and transmission technologies will play increasingly critical roles in national emergency, catastrophic planning and response, and risk management. Web-enabled public health GIS will be guided by Federal Geographic Data Committee spatial metadata, OpenGIS Web interoperability, and GML/XML geospatial Web content standards. Public health will become a responsive and integral part of the National Spatial Data Infrastructure.
PMID: 12543872 [PubMed - indexed for MEDLINE]